Lived experiences of patients with distal renal tubular acidosis treated with ADV7103 and of their caregivers: a qualitative study

Lived experiences of patients with distal renal tubular acidosis treated with ADV7103 and of their caregivers: a qualitative study

Abstract Background Consequences of distal renal tubular acidosis (dRTA) on growth, bone and kidney, sometimes associated with hearing loss, may significantly affect quality of life (QoL). This descriptive qualitative study explores QoL linked to dRTA and gathers the impressions of patients with thi...

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Bibliographic Details
Main Authors: Michaël Acquadro, Alexia Marrel, Maria A. Manso-Silván, Catherine Guittet, Sophie Joukoff, Aurélia Bertholet-Thomas
Format: Article
Language:English
Published: BMC 2022-03-01
Series:Orphanet Journal of Rare Diseases
Subjects:
dRTA
Potassium citrate and potassium bicarbonate
Qualitative research
Patient-reported outcomes
Online Access:https://doi.org/10.1186/s13023-022-02294-w

Internet

https://doi.org/10.1186/s13023-022-02294-w

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