Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region

Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region

Abstract Background The Ehlers-Danlos Syndromes (EDS) are a group of connective tissue disorders that are hereditary in nature and characterized by joint hypermobility and tissue fragility. The complex nature of this unique patient population requires multidisciplinary care, but appropriate centers...

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Bibliographic Details
Main Authors: Wendy Wagner, Tom A. Doyle, Clair A. Francomano, Dacre R. T. Knight, Colin M. E. Halverson
Format: Article
Language:English
Published: BMC 2024-03-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Ehlers-Danlos syndrome
Chicagoland
Multidisciplinary clinic
Hypermobility Spectrum Disorder
Comprehensive care
Online Access:https://doi.org/10.1186/s13023-024-03109-w

Internet

https://doi.org/10.1186/s13023-024-03109-w

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