On the outside looking in: a phenomenological study of the lived experience of Australian adults with a disorder of the corpus callosum

On the outside looking in: a phenomenological study of the lived experience of Australian adults with a disorder of the corpus callosum

Abstract Background While classified as a rare condition, a congenital disorder of the corpus callosum (DCC) is one of the most commonly identified brain anomalies in newborns, occurring in 1:4000 live births. Advances in imaging techniques have improved early diagnosis for children, yet adults with...

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Bibliographic Details
Main Authors: Maree Maxfield, Monica S. Cooper, Anne Kavanagh, Alexandra Devine, Liz Gill Atkinson
Format: Article
Language:English
Published: BMC 2021-12-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Corpus callosum
Rare disease
Lived experience
Phenomenology
Disability
Agenesis of the corpus callosum
Online Access:https://doi.org/10.1186/s13023-021-02140-5

Internet

https://doi.org/10.1186/s13023-021-02140-5

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