Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi-stakeholder workshop

Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi-stakeholder workshop

Abstract Background Rare disease patients and carers report significant impacts on mental health but studies on UK populations have focussed on relatively few, specific conditions. Collectively rare conditions represent a substantial health burden, with an estimated 3.5 million affected individuals...

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Bibliographic Details
Main Authors: Rosa Spencer-Tansley, Nick Meade, Farhana Ali, Amy Simpson, Amy Hunter
Format: Article
Language:English
Published: BMC 2022-05-01
Series:BMC Health Services Research
Subjects:
Rare disease
Undiagnosed
Mental health
Health service
Patient experience
Survey
Online Access:https://doi.org/10.1186/s12913-022-08060-9

Internet

https://doi.org/10.1186/s12913-022-08060-9

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