The Development of Guidelines for Rare Diseases: Past, Present and Future

The Development of Guidelines for Rare Diseases: Past, Present and Future

Although the incidence of rare diseases is extremely low, 6% to 8% of the global population are affected by more than 7000 rare diseases. Rare diseases guidelines are playing an increasingly important role as guiding documents in improving the health outcomes of patients with rare diseases. Therefor...

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Bibliographic Details
Main Authors: ZHOU Qi, LI Qinyuan, LIU Yali, LUO Zhengxiu, ZHANG Weishe, CHEN Tong, LI Guobao, SHANG Hongcai, YANG Kehu, ZHANG Bo, CHEN Yaolong, ZHANG Shuyang
Format: Article
Language:zho
Published: Editorial Office of Medical Journal of Peking Union Medical College Hospital 2023-05-01
Series:Xiehe Yixue Zazhi
Subjects:
rare diseases
clinical practice guideline
guideline development
Online Access:https://xhyxzz.pumch.cn/en/article/doi/10.12290/xhyxzz.2022-0360

Internet

https://xhyxzz.pumch.cn/en/article/doi/10.12290/xhyxzz.2022-0360

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