Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe:CF) – study protocol for a multicentre randomised clinical trial

Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe:CF) – study protocol for a multicentre randomised clinical trial

Introduction Cystic fibrosis (CF) is a life-limiting genetic disorder estimated to affect more than 160 000 individuals and their families worldwide. People living with CF commonly experience significant physical and emotional symptom burdens, disruptions to social roles and complex treatment decisi...

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Bibliographic Details
Main Authors: Andrew Althouse, Kwonho Jeong, Elisabeth P Dellon, Dio Kavalieratos, William Hunt, Douglas Conrad, Robert Arnold, Marie Bakitas, Anne Stephenson, Jesse Soodalter, Jane Lowers, Ethan Dubin, Cade Hovater, Jessica Goggin, Sigrid Ladores, Kimberly Curseen, Gretchen Winter, George Solomon, Jonathan Ailon
Format: Article
Language:English
Published: BMJ Publishing Group 2022-10-01
Series:BMJ Open Respiratory Research
Online Access:https://bmjopenrespres.bmj.com/content/9/1/e001381.full

Internet

https://bmjopenrespres.bmj.com/content/9/1/e001381.full

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