Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance

Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance

Abstract Background Osteogenesis imperfecta, fibrous dysplasia/McCune-Albright syndrome and X-linked hypophosphatemia are three rare musculoskeletal diseases characterised by bone deformities, frequent fractures and pain. Little high-quality research exists on appropriate treatment and long-term man...

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Bibliographic Details
Main Authors: Gerda Mickute, Kristina Staley, Heather Delaney, Oliver Gardiner, Amy Hunter, Richard Keen, Lorraine Lockhart, Nick Meade, Maria Newman, Stuart Ralston, Elaine Rush, Sheela Upadhyaya, Sandra Regan, Laura Watts, Jennifer Walsh, Paul White, Roger M. Francis, M. Kassim Javaid
Format: Article
Language:English
Published: BMC 2020-05-01
Series:Orphanet Journal of Rare Diseases
Subjects:
James Lind Alliance
Priority setting partnership
Fibrous dysplasia/McCune-Albright syndrome
X-linked hypophosphatemia
Osteogenesis imperfecta
Rare musculoskeletal diseases
Online Access:http://link.springer.com/article/10.1186/s13023-020-01398-5

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http://link.springer.com/article/10.1186/s13023-020-01398-5

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