Development and validation of a disease-specific quality of life scale for adult patients with Fabry disease in Japan

Development and validation of a disease-specific quality of life scale for adult patients with Fabry disease in Japan

Plain English summary Adults with Fabry disease experience severe challenges, which adversely impact their quality of life (QOL). As it is a rare disease, non-patients lack awareness of the severity of its symptoms and the resultant social difficulties of the patients. Most instruments that measure...

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Bibliographic Details
Main Authors: Yuta Koto, Wakana Yamashita, Yoko Lee, Nozomi Hadano, Chikara Kokubu, Norio Sakai
Format: Article
Language:English
Published: SpringerOpen 2022-11-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Fabry disease
Quality of life
Surveys and questionnaires
Patient-reported outcome measures
Scale development and validation
Online Access:https://doi.org/10.1186/s41687-022-00525-z

Internet

https://doi.org/10.1186/s41687-022-00525-z

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