Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice
Objectives: To describe and explore current practice, methods and experience of communicating carrier status information following newborn screening for cystic fibrosis (CF) and sickle cell (SC) disorders, to inform practice and further research. Design: Three linked qualitative studies. Setting: Al...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
NIHR Journals Library
2009-11-01
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| Series: | Health Technology Assessment |
| Subjects: | |
| Online Access: | https://doi.org/10.3310/hta13570 |