Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice

Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice

Objectives: To describe and explore current practice, methods and experience of communicating carrier status information following newborn screening for cystic fibrosis (CF) and sickle cell (SC) disorders, to inform practice and further research. Design: Three linked qualitative studies. Setting: Al...

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Bibliografiska uppgifter
Huvudupphovsmän: J Kai, F Ulph, T Cullinan, N Qureshi
Materialtyp: Artikel
Språk:English
Publicerad: NIHR Journals Library 2009-11-01
Serie:Health Technology Assessment
Ämnen:
newborn-screening
sickle-cell
cystic-fibrosis
carrier
blood-spot-test
immunoreactive-trypsinogen
Länkar:https://doi.org/10.3310/hta13570

Internet

https://doi.org/10.3310/hta13570

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