Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program’s Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study

BackgroundSickle cell disease (SCD) was first recognized in 1910 and identified as a genetic condition in 1949. However, there is not a universal clinical registry that can be used currently to estimate its prevalence. The Sickle Cell Data Collection (SCDC) program, funded by...

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Bibliographic Details
Main Authors: Ashima Singh, Marci K Sontag, Mei Zhou, Mahua Dasgupta, Tessa Crume, Morgan McLemore, Najibah Galadanci, Eldrida Randall, Nicole Steiner, Amanda M Brandow, Kathryn Koch, Joshua J Field, Kathryn Hassell, Angela B Snyder, Julie Kanter
Format: Article
Language:English
Published: JMIR Publications 2023-06-01
Series:JMIR Public Health and Surveillance
Online Access:https://publichealth.jmir.org/2023/1/e42816