Inclusion body myositis—health-related quality of life and care situation during phases of the “patience journey” in Germany: results from a qualitative study

Abstract Background To understand the health-related quality of life (HRQoL) in inclusion body myositis (IBM) from a holistic perspective on the background of a complex care situation. The focus was on how the patient journey may be structured over the course of this rare disease. Methods An explora...

Full description

Bibliographic Details
Main Authors: Katja C. Senn, Simone Thiele, Laura Gumbert, Sabine Krause, Maggie C. Walter, Klaus H. Nagels
Format: Article
Language:English
Published: BMC 2023-10-01
Series:Health and Quality of Life Outcomes
Subjects:
Online Access:https://doi.org/10.1186/s12955-023-02196-w