Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

BackgroundRare diseases (RDs) affect millions of people worldwide, and these diseases can severely impact the health-related quality of life (HRQoL) of those affected. Despite this, there is a lack of research measuring HRQoL using the EQ-5D-5L, which is one of the most widel...

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Bibliographic Details
Main Authors: Richard Huan Xu, Shamay S M Ng, Nan Luo, Dong Dong, Shuyang Zhang
Format: Article
Language:English
Published: JMIR Publications 2023-10-01
Series:JMIR Public Health and Surveillance
Online Access:https://publichealth.jmir.org/2023/1/e50147