Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey
BackgroundRare diseases (RDs) affect millions of people worldwide, and these diseases can severely impact the health-related quality of life (HRQoL) of those affected. Despite this, there is a lack of research measuring HRQoL using the EQ-5D-5L, which is one of the most widel...
Main Authors: | Richard Huan Xu, Shamay S M Ng, Nan Luo, Dong Dong, Shuyang Zhang |
---|---|
Format: | Article |
Language: | English |
Published: |
JMIR Publications
2023-10-01
|
Series: | JMIR Public Health and Surveillance |
Online Access: | https://publichealth.jmir.org/2023/1/e50147 |
Similar Items
-
Construction and Application of National Rare Diseases Registry System of China
by: GUO Jian, et al.
Published: (2022-01-01) -
Recent Polices and Practice in Rare Diseases in China
by: ZHANG Shuyang, et al.
Published: (2022-01-01) -
Engaging the Canadian public on reimbursement decision-making for drugs for rare diseases: a national online survey
by: Julie Polisena, et al.
Published: (2017-05-01) -
Rickettsiosis in Denmark: A nation-wide survey
by: Bo Bødker Jensen, et al.
Published: (2023-11-01) -
Evaluating the national system for rare diseases in China from the point of drug access: progress and challenges
by: Luyao Qiao, et al.
Published: (2022-09-01)