The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1

The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1

BackgroundSpinal Muscular Atrophy (SMA) type 1 is a debilitating condition with a poor prognosis, though therapeutic advances are promising. Long-term ventilation is a common management strategy as respiratory function deteriorates. Without consensus on best practice respiratory management, the deci...

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Bibliographic Details
Main Authors: Mary Brigid Quirke, Lorna Cassidy, Denise Alexander, Cathal Walsh, Katie Hill, Kate Masterson, Nia Flynn, Maria Brenner
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-10-01
Series:Frontiers in Pediatrics
Subjects:
factorial survey
spinal muscular atrophy
long-term ventilation
paediatrics
critical care
children
Online Access:https://www.frontiersin.org/articles/10.3389/fped.2023.1252440/full

Internet

https://www.frontiersin.org/articles/10.3389/fped.2023.1252440/full

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