P047: Exit interviews with caregivers of pediatric patients with classic galactosemia demonstrate the meaningfulness of changes in the ACTION-Galactosemia Kids Trial

Bibliographic Details
Main Authors: Evan Bailey, Jason Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
Format: Article
Language:English
Published: Elsevier 2024-01-01
Series:Genetics in Medicine Open
Online Access:http://www.sciencedirect.com/science/article/pii/S2949774424000700