Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study

Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study

The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis (ALS) the opportunity to receive a personalized prognosis of survival at the time of diagnosis. We explored experiences of patients with ALS, caregivers, and physicians with discussing personalized prognosis thro...

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Bibliographic Details
Main Authors: Remko M. van Eenennaam, Loulou S. Koppenol, Willeke J. Kruithof, Esther T. Kruitwagen-van Reenen, Sotice Pieters, Michael A. van Es, Leonard H. van den Berg, Johanna M. A. Visser-Meily, Anita Beelen
Format: Article
Language:English
Published: MDPI AG 2021-11-01
Series:Brain Sciences
Subjects:
amyotrophic lateral sclerosis
motor neuron disease
prognosis
palliative care
quality of life
qualitative study
Online Access:https://www.mdpi.com/2076-3425/11/12/1597

Internet

https://www.mdpi.com/2076-3425/11/12/1597

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