Identifying Epidermolysis Bullosa Patient Needs and Perceived Treatment Benefits: An Explorative Study Using the Patient Benefit Index

Identifying Epidermolysis Bullosa Patient Needs and Perceived Treatment Benefits: An Explorative Study Using the Patient Benefit Index

Epidermolysis bullosa (EB) is a genetic blistering skin condition for which no cure exists. Symptom alleviation and quality of life are therefore central to EB care. This study aimed to gain insight into EB patient needs and benefits from current clinical care. Two questionnaires were administered c...

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Bibliographic Details
Main Authors: Nicholas H. B. Schräder, Eva W. H. Korte, José C. Duipmans, Roy E. Stewart, Maria C. Bolling, André P. Wolff
Format: Article
Language:English
Published: MDPI AG 2021-12-01
Series:Journal of Clinical Medicine
Subjects:
epidermolysis bullosa
patient perspectives
patient benefit index
clinical outcomes
Online Access:https://www.mdpi.com/2077-0383/10/24/5836

Internet

https://www.mdpi.com/2077-0383/10/24/5836

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