Identifying Epidermolysis Bullosa Patient Needs and Perceived Treatment Benefits: An Explorative Study Using the Patient Benefit Index
Epidermolysis bullosa (EB) is a genetic blistering skin condition for which no cure exists. Symptom alleviation and quality of life are therefore central to EB care. This study aimed to gain insight into EB patient needs and benefits from current clinical care. Two questionnaires were administered c...
Main Authors: | Nicholas H. B. Schräder, Eva W. H. Korte, José C. Duipmans, Roy E. Stewart, Maria C. Bolling, André P. Wolff |
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Format: | Article |
Language: | English |
Published: |
MDPI AG
2021-12-01
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Series: | Journal of Clinical Medicine |
Subjects: | |
Online Access: | https://www.mdpi.com/2077-0383/10/24/5836 |
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