Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study

Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study

Background: A condition is defined as rare if it affects fewer than 1 in 2000 people in the general population. Limited evidence suggests that care is poorly co-ordinated for people affected by rare conditions. Objectives: To investigate if and how care of people with rare conditions is co-ordinated...

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Bibliographic Details
Main Authors: Stephen Morris, Emma Hudson, Lara Bloom, Lyn S Chitty, Naomi J Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Pei Li Ng, Sharon Parkes, Angus IG Ramsay, Amy Simpson, Alastair Sutcliffe, Christine Taylor, Holly Walton
Format: Article
Language:English
Published: NIHR Journals Library 2022-03-01
Series:Health and Social Care Delivery Research
Subjects:
co-ordinated care
care co-ordination
rare conditions
rare diseases
scoping review
survey
discrete-choice experiment
taxonomy
care co-ordinator
specialist centre
care plan
Online Access:https://doi.org/10.3310/LNZZ5321

Internet

https://doi.org/10.3310/LNZZ5321

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