Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project

Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project

<p>Abstract</p> <p>Background</p> <p>There is a need for a disease-specific instrument for assessing health-related quality of life in adults with hereditary angioedema due to C1 inhibitor deficiency, a rare, disabling and life-threatening disease. In this paper we repo...

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Bibliographic Details
Main Authors: Prior Nieves, Remor Eduardo, Gómez-Traseira Carmen, López-Serrano Concepción, Cabañas Rosario, Contreras Javier, Campos Ángel, Cardona Victoria, Cimbollek Stefan, González-Quevedo Teresa, Guilarte Mar, de Rojas Dolores Hernández, Marcos Carmen, Rubio María, Tejedor-Alonso Miguel, Caballero Teresa
Format: Article
Language:English
Published: BMC 2012-07-01
Series:Health and Quality of Life Outcomes
Subjects:
Hereditary angioedema
C1 inhibitor deficiency
Quality of Life
Questionnaire
Qualitative methodology
Online Access:http://www.hqlo.com/content/10/1/82

Internet

http://www.hqlo.com/content/10/1/82

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