Facing ignorance: people with rare disorders and their experiences with public health and welfare services

This qualitative study shows that people with rare disorders may experience barriers that can be related to the fact that the disorder is labelled ‘rare’ when they access health and welfare services. Service-providers within a range of sectors and services seemed to be reluctant to get involved in s...

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Bibliographic Details
Main Authors: Lisbet Grut, Marit H. Kvam
Format: Article
Language:English
Published: Stockholm University Press 2012-02-01
Series:Scandinavian Journal of Disability Research
Subjects:
Online Access:https://www.sjdr.se/articles/447