Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

Background: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. Methods: This cross-sectional, non...

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Bibliographic Details
Main Authors: Yuta Koto, Aya Narita, Shinichi Noto, Masafumi Okada, Midori Ono, Terumi Baba, Rieko Sagara, Norio Sakai
Format: Article
Language:English
Published: Elsevier 2023-09-01
Series:Molecular Genetics and Metabolism Reports
Subjects:
Caregiver burden
Gaucher disease
Japan
Caregiver Impact Questionnaire
Neuronopathic Gaucher disease
Zarit Caregiver Burden Interview
Online Access:http://www.sciencedirect.com/science/article/pii/S221442692300040X

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http://www.sciencedirect.com/science/article/pii/S221442692300040X

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