Rare diseases: why is a rapid referral to an expert center so important?

Abstract Background Patients with rare diseases usually go through years of diagnostic odysseys. The large number of rare diseases and the associated lack of expertise pose a major challenge to physicians. There are few physicians dealing with patients with rare diseases and they usually work in a l...

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Bibliographic Details
Main Authors: Tina Willmen, Lukas Willmen, Anne Pankow, Simon Ronicke, Heinz Gabriel, Annette Doris Wagner
Format: Article
Language:English
Published: BMC 2023-08-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-023-09886-7