The symptom experience of hereditary angioedema (HAE) patients beyond HAE attacks: literature review and clinician interviews

The symptom experience of hereditary angioedema (HAE) patients beyond HAE attacks: literature review and clinician interviews

Abstract Background Hereditary angioedema (HAE) is a genetic disorder characterized by re-occurring swelling episodes called “attacks,” usually in the limbs, face, airways, and intestinal tract. New prophylactic therapies have reduced the frequency of these attacks. This study describes results from...

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Bibliographic Details
Main Authors: Milenka Jean-Baptiste, Robbin Itzler, Subhransu Prusty, Dylan Supina, Mona L. Martin
Format: Article
Language:English
Published: BMC 2022-06-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Hereditary angioedema
HAE symptoms and impacts
C1-INH
HRQoL
Between attack symptoms
Online Access:https://doi.org/10.1186/s13023-022-02360-3

Internet

https://doi.org/10.1186/s13023-022-02360-3

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