An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach
BackgroundOwing to their low prevalence, rare diseases are poorly addressed in the scientific literature and clinical practice guidelines. Thus, health care workers are inadequately equipped to provide timely diagnoses, appropriate treatment, and support for these poorly unde...
| Main Authors: | , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2023-11-01
|
| Series: | Journal of Participatory Medicine |
| Online Access: | https://jopm.jmir.org/2023/1/e46607 |