The Minimum Data Set for Rare Diseases: Systematic Review

The Minimum Data Set for Rare Diseases: Systematic Review

BackgroundThe minimum data set (MDS) is a collection of data elements to be grouped using a standard approach to allow the use of data for clinical and research purposes. Health data are typically voluminous, complex, and sometimes too ambiguous to generate indicators that ca...

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Bibliographic Details
Main Authors: Filipe Andrade Bernardi, Bibiana Mello de Oliveira, Diego Bettiol Yamada, Milena Artifon, Amanda Maria Schmidt, Victória Machado Scheibe, Domingos Alves, Têmis Maria Félix
Format: Article
Language:English
Published: JMIR Publications 2023-07-01
Series:Journal of Medical Internet Research
Online Access:https://www.jmir.org/2023/1/e44641

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https://www.jmir.org/2023/1/e44641

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