A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China

A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China

Abstract Background There are over 16.8 million rare disease patients in China, representing a large community that should not be neglected. While the public lack the awareness of their existence and difficult status quo, for one reason that they exist as a rare and special group in our society, for...

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Bibliographic Details
Main Authors: Xuefeng Li, Meiling Liu, Jinduan Lin, Bingzhe Li, Xiangyu Zhang, Shu Zhang, Zijuan Lu, Jianyong Zhang, Jincheng Zhou, Li Ou
Format: Article
Language:English
Published: BMC 2021-07-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare disease
Orphan drug
Patient organizations
Questionnaire
Online Access:https://doi.org/10.1186/s13023-021-01954-7

Internet

https://doi.org/10.1186/s13023-021-01954-7

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