Care Issues in Patients with Rett Syndrome: A Parental Perspective

Background: The purpose of this study is to better understand the way caregivers of patients with Rett syndrome perceive the quality of the health care services they receive and identify its main shortcomings. Methods: A survey was distributed to all caregivers who are part of AIRETT (the Italian As...

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Bibliographic Details
Main Authors: Claudio Cherchi, Elena Chiappini, Maria Beatrice Chiarini Testa, Paolo Banfi, Edvige Veneselli, Renato Cutrera
Format: Article
Language:English
Published: MDPI AG 2023-10-01
Series:Children
Subjects:
Online Access:https://www.mdpi.com/2227-9067/10/10/1713