Health equity innovation in precision medicine: data stewardship and agency to expand representation in clinicogenomics

Abstract Most forms of clinical research examine a very minute cross section of the patient journey. Much of the knowledge and evidence base driving current genomic medicine practice entails blind spots arising from underrepresentation and lack of research participation in clinicogenomic databases....

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Bibliographic Details
Main Authors: Patrick J. Silva, Vasiliki Rahimzadeh, Reid Powell, Junaid Husain, Scott Grossman, Adam Hansen, Jennifer Hinkel, Rafael Rosengarten, Marcia G. Ory, Kenneth S. Ramos
Format: Article
Language:English
Published: BMC 2024-12-01
Series:Health Research Policy and Systems
Subjects:
Online Access:https://doi.org/10.1186/s12961-024-01258-9