The social licence for data-intensive health research: towards co-creation, public value and trust

The social licence for data-intensive health research: towards co-creation, public value and trust

Abstract Background The rise of Big Data-driven health research challenges the assumed contribution of medical research to the public good, raising questions about whether the status of such research as a common good should be taken for granted, and how public trust can be preserved. Scandals arisin...

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Bibliographic Details
Main Authors: Sam H. A. Muller, Shona Kalkman, Ghislaine J. M. W. van Thiel, Menno Mostert, Johannes J. M. van Delden
Format: Article
Language:English
Published: BMC 2021-08-01
Series:BMC Medical Ethics
Subjects:
Social licence
Data-intensive health research
Governance
Co-creation
Trust
Patient and public involvement
Online Access:https://doi.org/10.1186/s12910-021-00677-5

Internet

https://doi.org/10.1186/s12910-021-00677-5

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