Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project

Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project

Objective: The European Registries for Rare Endocrine Conditions (EuRRECa, eurreb. eu) includes an e-reporting registry (e-REC) used to perform surveillance of conditions within the European Reference Network (ERN) for rare endocrine conditions (Endo-ERN). The aim of this study was to report the exp...

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Bibliographic Details
Main Authors: S R Ali, J Bryce, A L Priego-Zurita, M Cherenko, C Smythe, T M de Rooij, M Cools, T Danne, H Katugampola, O M Dekkers, O Hiort, A Linglart, I Netchine, A Nordenstrom, P Attila, L Persani, N Reisch, A Smyth, Z Sumnik, D Taruscio, W E Visser, A M Pereira, N M Appelman-Dijkstra, S F Ahmed
Format: Article
Language:English
Published: Bioscientifica 2023-11-01
Series:Endocrine Connections
Subjects:
registries
databases
rare conditions
rare diseases
european reference networks
endo-ern
Online Access:https://ec.bioscientifica.com/view/journals/ec/12/12/EC-23-0434.xml

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https://ec.bioscientifica.com/view/journals/ec/12/12/EC-23-0434.xml

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