Rare and undiagnosed: Daunting challenges for patients, doctors, and researchers alike
This personal narrative identifies several challenges for patients, doctors, and researchers posed by rare illnesses and difficult to diagnose/long-term undiagnosed patients. In it, I describe several observations on my experiences as a long-time undiagnosed patient and now as one with multiple rare...
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| Format: | Article |
| Language: | English |
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The Beryl Institute
2022-11-01
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| Series: | Patient Experience Journal |
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| Online Access: | https://pxjournal.org/journal/vol9/iss3/6 |