Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children

Abstract Background There is a lack of patient derived, child specific outcome measures to capture what health outcomes are important to children with Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME). We developed a new Patient Reported Outcome Measure (PROM) for paediatric CFS/ME through q...

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Bibliographic Details
Main Authors: Roxanne M. Parslow, Alison Shaw, Kirstie L. Haywood, Esther Crawley
Format: Article
Language:English
Published: SpringerOpen 2019-11-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Chronic fatigue syndrome/ Myalgic encephalopathy (CFS/ME)
Children
Patient reported outcome measure (PROM)
Qualitative
Cognitive interviews
Three step test interview (TSTI)
Online Access:http://link.springer.com/article/10.1186/s41687-019-0156-8

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http://link.springer.com/article/10.1186/s41687-019-0156-8

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