Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome

Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome

ObjectiveThe present paper describes the design, development, and implementation of the AutoInflammatory Disease Alliance (AIDA) International Registry specifically dedicated to patients with Schnitzler's syndrome.MethodsThis is a clinical physician-driven, population- and electronic-based regi...

Full description

Bibliographic Details
Main Authors: Jurgen Sota, Antonio Vitale, Ewa Więsik-Szewczyk, Micol Frassi, Giuseppe Lopalco, Giacomo Emmi, Marcello Govoni, Amato de Paulis, Achille Marino, Antonio Gidaro, Sara Monti, Daniela Opris-Belinski, Rosa Maria R. Pereira, Karina Jahnz-Rózyk, Carla Gaggiano, Francesca Crisafulli, Florenzo Iannone, Irene Mattioli, Francesca Ruffilli, Ilaria Mormile, Katarzyna Rybak, Valeria Caggiano, Paolo Airò, Abdurrahman Tufan, Stefano Gentileschi, Gaafar Ragab, Ibrahim A. Almaghlouth, Adham Aboul-Fotouh Khalil, Marco Cattalini, Francesco La Torre, Maria Tarsia, Henrique A. Mayrink Giardini, Moustafa Ali Saad, Monica Bocchia, Federico Caroni, Teresa Giani, Elisa Cinotti, Piero Ruscitti, Pietro Rubegni, Marília A. Dagostin, Bruno Frediani, Aslihan Avanoglu Guler, Francesca Della Casa, Maria Cristina Maggio, Andreas Recke, Dagmar von Bubnoff, Karoline Krause, Alberto Balistreri, Claudia Fabiani, Donato Rigante, Luca Cantarini
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-07-01
Series:Frontiers in Medicine
Subjects:
autoinflammatory disease
rare disease
international registry
personalized medicine
biotherapies
interleukin-1
Online Access:https://www.frontiersin.org/articles/10.3389/fmed.2022.931189/full

Internet

https://www.frontiersin.org/articles/10.3389/fmed.2022.931189/full

Similar Items