Reuma.pt/vasculitis – the Portuguese vasculitis registry

Reuma.pt/vasculitis – the Portuguese vasculitis registry

Abstract Background The vasculitides are a group of rare diseases with different manifestations and outcomes. New therapeutic options have led to the need for long-term registries. The Rheumatic Diseases Portuguese Register, Reuma.pt, is a web-based electronic clinical record, created in 2008, which...

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Main Authors: Cristina Ponte, Nikita Khmelinskii, Vítor Teixeira, Karine Luz, Daniela Peixoto, Marília Rodrigues, Mariana Luís, Lídia Teixeira, Sandra Sousa, Nathalie Madeira, Joana A. Aleixo, Teresa Pedrosa, Sofia Serra, Raquel Campanilho-Marques, Walter Castelão, Ana Cordeiro, Inês Cordeiro, Sílvia Fernandes, Carla Macieira, Pedro Madureira, Armando Malcata, Romana Vieira, Fernando Martins, Graça Sequeira, Jaime C. Branco, Lúcia Costa, José Vaz Patto, José Canas da Silva, José A. Pereira da Silva, Carmo Afonso, Helena Canhão, Maria J. Santos, Raashid A. Luqmani, João E. Fonseca
Format: Article
Language:English
Published: BMC 2020-05-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare diseases
Vasculitis
Patient registries
Database management systems
Patient reported outcome measures
Online Access:http://link.springer.com/article/10.1186/s13023-020-01381-0

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http://link.springer.com/article/10.1186/s13023-020-01381-0

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