System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency

System change addresses the fundamental causes of persistent, complex problems to achieve large-scale, sustainable solutions at multiple levels. Recognising the need for system change to ensure equitable access to healthcare for people with bleeding disorders and other rare diseases, the European Ha...

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Bibliographic Details
Main Authors: Gacser Zita, Skouw-Rasmussen Naja
Format: Article
Language:English
Published: Sciendo 2024-02-01
Series:The Journal of Haemophilia Practice
Subjects:
Online Access:https://doi.org/10.2478/jhp-2024-0005