Factors affecting the ability of patients with complex vascular anomalies to navigate the healthcare system

Abstract Background Vascular anomalies (VAs) are rare congenital disorders that can cause pain, disfigurement, coagulopathy, asymmetric growth, and disability. Patients with complex VAs experience multiple barriers to accessing expert care. It is imperative to understand which factors support these...

Full description

Bibliographic Details
Main Authors: Bryan Sisk, Sunny Lin, Anna M. Kerr
Format: Article
Language:English
Published: BMC 2024-01-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Online Access:https://doi.org/10.1186/s13023-024-03018-y