Patient’s thoughts and expectations about centres of expertise for PKU

Patient’s thoughts and expectations about centres of expertise for PKU

Abstract Background In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. Methods To identify expectations of patients/caregivers with PKU of C...

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Bibliographic Details
Main Authors: A. M. J. van Wegberg, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. van Vliet, F. J. van Spronsen
Format: Article
Language:English
Published: BMC 2021-01-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Phenylketonuria
Patients view
Centre of expertise
European reference network
Online Access:https://doi.org/10.1186/s13023-020-01647-7

Internet

https://doi.org/10.1186/s13023-020-01647-7

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