Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions

Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions

Abstract Background Upper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific outcome measure exists. When developing a measure specific to a population with a rare musculoskeletal condition, clinicians’ and patients’ persp...

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Bibliographic Details
Main Authors: Caroline Elfassy, Lisa Wagner, Johanne Higgins, Kathleen Montpetit, Laurie Snider, Noémi Dahan-Oliel
Format: Article
Language:English
Published: BMC 2023-08-01
Series:Research Involvement and Engagement
Subjects:
Stakeholder engagement
Outcome measure development
Rare musculoskeletal condition
Upper extremity
Online Access:https://doi.org/10.1186/s40900-023-00479-6

Internet

https://doi.org/10.1186/s40900-023-00479-6

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