Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions
Abstract Background Upper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific outcome measure exists. When developing a measure specific to a population with a rare musculoskeletal condition, clinicians’ and patients’ persp...
Main Authors: | , , , , , |
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Format: | Article |
Language: | English |
Published: |
BMC
2023-08-01
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Series: | Research Involvement and Engagement |
Subjects: | |
Online Access: | https://doi.org/10.1186/s40900-023-00479-6 |