Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions
Abstract Background Upper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific outcome measure exists. When developing a measure specific to a population with a rare musculoskeletal condition, clinicians’ and patients’ persp...
Main Authors: | Caroline Elfassy, Lisa Wagner, Johanne Higgins, Kathleen Montpetit, Laurie Snider, Noémi Dahan-Oliel |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2023-08-01
|
Series: | Research Involvement and Engagement |
Subjects: | |
Online Access: | https://doi.org/10.1186/s40900-023-00479-6 |
Similar Items
-
A Real-Time Control System of Upper-Limb Human Musculoskeletal Model With Environmental Integration
by: Azhar Aulia Saputra, et al.
Published: (2023-01-01) -
Upper Extremity Musculoskeletal Injuries Presenting to an Emergency Department Before and During the Initial COVID-19 Pandemic Surge
by: Prokopakis KE, et al.
Published: (2023-03-01) -
Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements
by: Hannah Jones, et al.
Published: (2023-12-01) -
Stakeholders Engagement And Performance of Non-Governmental Organizations In Ethiopia
by: Lakachew Zeleke, et al.
Published: (2024-01-01) -
Prevalence of Musculoskeletal Disorders and Related Risk Factors among the Water-Counter Manufacturer Workers
by: Falaki H.1 BSc,, et al.
Published: (2016-08-01)