The economic burden of diagnostic uncertainty on rare disease patients

Abstract Background It often takes a long time before a rare disease is diagnosed. Without a diagnosis, the right therapy often cannot be carried out and without the right therapy, the patients are denied the opportunity for a cure or relief from their symptoms. In addition, rare diseases can also h...

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Bibliographic Details
Main Authors: Lukas Willmen, Lukas Völkel, Tina Willmen, Thilo Deckersbach, Siegfried Geyer, Annette Doris Wagner
Format: Article
Language:English
Published: BMC 2024-11-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-024-11763-w