A personalized genomic results e-booklet, co-designed and pilot-tested by families

A personalized genomic results e-booklet, co-designed and pilot-tested by families

Objective: To develop and evaluate a personalizable genomic results e-booklet that helps families understand their genomic testing results and navigate available resources. Methods: The need for the Genomics Results e-Booklet was identified by families, after which this tool was developed by a team...

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Bibliographic Details
Main Authors: Julia Handra, Colleen Guimond, Isabel Jordan, Brenda Lenahan, Kelsey Ohs, Rhea Beauchesne, Shelin Adam, Jan M. Friedman, Patricia Birch
Format: Article
Language:English
Published: Elsevier 2022-12-01
Series:PEC Innovation
Subjects:
Genome sequencing
genomic results
genetic counselling
patient-oriented research
patient co-design
Online Access:http://www.sciencedirect.com/science/article/pii/S2772628222000243

Internet

http://www.sciencedirect.com/science/article/pii/S2772628222000243

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