A personalized genomic results e-booklet, co-designed and pilot-tested by families
Objective: To develop and evaluate a personalizable genomic results e-booklet that helps families understand their genomic testing results and navigate available resources. Methods: The need for the Genomics Results e-Booklet was identified by families, after which this tool was developed by a team...
Main Authors: | Julia Handra, Colleen Guimond, Isabel Jordan, Brenda Lenahan, Kelsey Ohs, Rhea Beauchesne, Shelin Adam, Jan M. Friedman, Patricia Birch |
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Format: | Article |
Language: | English |
Published: |
Elsevier
2022-12-01
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Series: | PEC Innovation |
Subjects: | |
Online Access: | http://www.sciencedirect.com/science/article/pii/S2772628222000243 |
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