Improved data linkage in the Extended Cohort for E-health, Environment and DNA (EXCEED) study through an electronic informed consent (eConsent) and recruitment management system.

Improved data linkage in the Extended Cohort for E-health, Environment and DNA (EXCEED) study through an electronic informed consent (eConsent) and recruitment management system.

Objectives The complexities of the informed consent process for participating in cohort-based medical studies are well-recognised, and the pandemic presented specific challenges related to this. Our response in EXCEED was to build and deploy a local secure eConsent system that was simple to use, pro...

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Bibliographic Details
Main Authors: Xueyang Wang, Emma Adams, Catherine Bee, Anna Guyatt, Catherine John, Richard Packer, David Shepherd, Laura Venn, Martin Tobin, Robert Free
Format: Article
Language:English
Published: Swansea University 2022-08-01
Series:International Journal of Population Data Science
Subjects:
data linkage
eConsent
data quality
data services
cohort study
pandemic
Online Access:https://ijpds.org/article/view/2058

Internet

https://ijpds.org/article/view/2058

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