The socioeconomic burden of spinal muscular atrophy in Saudi Arabia: a cross-sectional pilot study

The socioeconomic burden of spinal muscular atrophy in Saudi Arabia: a cross-sectional pilot study

BackgroundSpinal muscular atrophy (SMA) is a rare debilitating condition with a significant burden for patients and society. However, little is known about how it affects Saudi Arabia's population. The socioeconomic and medical characteristics of affected SMA patients and their caregivers are l...

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Main Authors: Khloud Mubark Alotaibi, Mohannad Alsuhaibani, Khalid S. Al-Essa, Ahmed Khamis Bamaga, Amnah S. Mukhtar, Ali Mohammed Alrumaih, Huda F. Al-Hasinah, Shaikhah Aldossary, Fouad Alghamdi, Mohamad-Hani Temsah, Norah Abanmy, Monira Alwhaibi, Yousif Asiri, Yazed AlRuthia
Format: Article
Language:English
Published: Frontiers Media S.A. 2024-02-01
Series:Frontiers in Public Health
Subjects:
access to treatments
burden of disease
Saudi Arabia
spinal muscular atrophy
out-of-pocket (OOP) expenses
Online Access:https://www.frontiersin.org/articles/10.3389/fpubh.2024.1303475/full

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https://www.frontiersin.org/articles/10.3389/fpubh.2024.1303475/full

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