Citizens under the umbrella: citizenship projects and the development of genetic umbrella organizations in the USA and the UK
Social scientists have observed previously that patient support groups began to have significant influence over both research and clinical services of medical genetics in the early 2000s. This observation led to the idea of genetic citizenship, suggesting that the active participation and interventi...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2020-04-01
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| Series: | New Genetics and Society |
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| Online Access: | http://dx.doi.org/10.1080/14636778.2019.1693889 |