Raising the standards of patient‐centered outcomes research in myelodysplastic syndromes: Clinical utility and validation of the subscales of the QUALMS from the MDS‐RIGHT project

Raising the standards of patient‐centered outcomes research in myelodysplastic syndromes: Clinical utility and validation of the subscales of the QUALMS from the MDS‐RIGHT project

Abstract Background Clinical decision‐making for patients with myelodysplastic syndromes (MDS) is challenging, and both disease and treatment effects heavily impact health‐related quality of life (HRQoL) of these patients. Therefore, disease‐specific HRQoL measures can be critical to harness the pat...

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Bibliographic Details
Main Authors: Fabio Efficace, Karin Koinig, Francesco Cottone, David Bowen, Moshe Mittelman, Kathrin Sommer, Saskia Langemeijer, Dominic Culligan, Kalman Filanovsky, Michael Storck, Alexandra Smith, Corine van Marrewijk, Martin Dugas, Igor Stojkov, Uwe Siebert, Theo de Witte, Reinhard Stauder
Format: Article
Language:English
Published: Wiley 2023-03-01
Series:Cancer Medicine
Subjects:
myelodysplasia
myelodysplastic syndromes
patient‐reported outcomes
quality of life
questionnaire
symptom burden
Online Access:https://doi.org/10.1002/cam4.5487

Internet

https://doi.org/10.1002/cam4.5487

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