Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study

BackgroundCaregivers of children with medical complexity navigate complex family management tasks for their child both in the hospital and home-based setting. The roles and relationships of members of their social network and the dynamic evolution of these family management t...

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Bibliographic Details
Main Authors: Jessica Keim-Malpass, Christopher Lunsford, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez
Format: Article
Language:English
Published: JMIR Publications 2023-11-01
Series:JMIR Formative Research
Online Access:https://formative.jmir.org/2023/1/e52454